[rev_slider alias="web-product-light"]

HELP US DEFEAT MSA NOW

Defeat MSA is an inclusive US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

GET YOUR FREE TICKETS FOR TWO STREAMING FILMS:

 THROUGHOUT THE MONTH OF OCTOBER – AT YOUR TIME OF CHOICE:

TWO AWARD WINNING AND POWERFUL DOCUMENTARY FILMS:

“A DAY FOR SUSANA”

(Brazil, 2018 with English & Spanish Subtitles, 85 Minutes)

&

“MSA: THE IAN MACINDOE STORY”

(Australia, 2017 with English & Spanish Subtitles, 41 MINUTES)

 

— JUST IN TIME FOR OCT 3, WORLD MSA DAY BUT WATCH ANYTIME IN OCTOBER!

(Please Read The Short Film Summaries and Watch Film Trailers on Film Streaming Pages)

News from Social Media

22 hours ago

Defeat MSA DownUnder
View on Facebook

NEW MSA RELATED RESEARCH IN AUSTRALIA:

If you have been diagnosed with MSA, read about the study and contact your doctor to discuss the study:

"Clinical Effect of Ampreloxetine (TD-9855) for Treating snOH in Subjects With Primary Autonomic Failure (SEQUOIA)"

A Phase 3 study to evaluate efficacy, safety, and tolerability of ampreloxetine (TD-9855) in subjects with primary autonomic failures (MSA, PD, or PAF) and snOH with up to 4 weeks of treatment.

READ ABOUT THE STUDY HERE: clinicaltrials.gov/ct2/show/NCT03750552

CONTACT INFORMATION: medinfo@theravance.com

If you want to keep updated on MSA related research, subscribe to Defeat MSA Down Under's research newsletter: www.msadownunder.org.au/subscribe/
... See MoreSee Less

View on Facebook

Dedicated to Defeating MSA Down Under! #defeatmsa #au #nz https://www.instagram.com/p/CGkxCqzsVGa/?igshid=rtkpzt9nzncd

Despite being found in only a small number of patients, this is an important finding (of course, needs to be replicated). @DefeatMsa @MSAshoe https://onlinelibrary.wiley.com/doi/10.1002/ana.25902

LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA Expert Spotlight

Patrik Brundin, M.D., Ph.D.

Patrik Brundin, M.D., Ph.D.

Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan

Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases such as MSA. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people with Parkinson’s. His current research focuses on pathogenic mechanisms of Parkinson’s and related diseases as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis of Parkinson’s and MSA, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s and Multiple System Atrophy.

List of Publications

Scholia List of Publications

Spotlight Links

 

about the

MSA Awareness Shoe – #KickMSA

The MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA

about the

MSA Awareness Shoe – #KickMSA

The MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA

Join the world-wide MSA Awareness initiative

Join the world-wide MSA Awareness initiative

PATIENTS NEED OUR HELP

Defeat MSA invites all our friends & allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Join the world-wide MSA Awareness initiative

OUR LEGACY GRANTS

OUR

LEGACY

GRANTS

The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level.

Please email: mailto:legacygrants@msadownunder.org.au

MSA BLOGS 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...

Advocate’s Blog

Patient’s Blog

“Defeat MSA is a truly powerful organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to grow and prosper.”

Elena Fracassa, MS

“I have observed this charity grow since it’s inception. The charity remains true to its objective of supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program, networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Dr. Pratik Bhattacharya, MD, MPH

LOOKING FOR OTHER WAYS TO GET INVOLVED?

JOIN THE MOVEMENT TO #DEFEATMSA

 

Follow us on social media

Follow us on Twitter

Follow us on Facebook

Follow us on Instagram

Follow us on YouTube

Follow us on LinkedIn

 

Follow us on social media

Follow us on Twitter

Follow us on Facebook

Follow us on Instagram

Follow us on YouTube

Follow us on LinkedIn

msa italy logo

Copyright 2020 | Defeat Multiple System Atrophy AU-NZ

Privacy Policy

CREATEDBYRIOSMEDIA

Copy link
Powered by Social Snap