PATIENT
PROGRAMS

GLOBAL
ONLINE SUPPORT AND BRAIN RESEARCH HUB

The Global Online Support and Research Hub (“Brain Hub”) is an independent video chat platform with downloadable Apple and Android apps that enable mobility limited patients to privately connect with others, in disease-specific patient groups. The Hub also provides a platform for researchers and health professionals to meet and collaborate. As an Alliance partner, Defeat MSA Down Under is able to use this tool.

The Hub helps patients and caregivers establish support groups with others in a convenient and secure way. The only requirements for adult patient users will be internet capability, a computer or mobile device and a group moderator who is trained in the basic functions of the hub.

The hub is an invaluable tool to help patients and caregivers maintain their independence while combating the usual feelings of isolation, that come with a diagnosis.

 Dr. Pratik Bhattacharya, Defeat MSA Alliance Research Board

Now, for the first time, we have a dedicated way to connect those who are facing devastating brain diseases, from Detroit to Yellowknife, Limerick to Nairobi, Manila to Rio and everywhere in between.

 Ms. Elena Fracassa, Defeat MSA Alliance Board

JOIN NOW, Visit www.BrainPatient.org

Or DOWNLOAD:

Global Online Support Hub in the Apple App Store or the Google Play Store.

Learn About Being A Hub Moderator

Please complete this form if you wish to become a volunteer Hub Moderator on the Global Online Patient Support Hub (www.BrainPatient.org). We are grateful for your help!

MSA
CAREGIVERS BLOG

Joe and Anne Kastelic

Joe and Anne Kastelic

PATIENT
BLOG

FACEBOOK
ONLINE GROUPS

FOR ALL POLICIES RELATED TO DEFEAT MSA DOWN UNDER HOSTED ONLINE AND VIDEO CHAT GROUPS,  VISIT THIS PAGE

https://www.facebook.com/groups/DefeatMSADownUnderGroup/

(Defeat MSA Down Under – Australia & New Zealand)

https://www.facebook.com/groups/MSAtreatments/

(Defeat MSA Global – MSA Related Treatments, Research & News)

MSA – A Caregivers Journey

 https://www.facebook.com/groups/msacaregivers/

MSA Patient Life Affirmations 

https://www.facebook.com/groups/msalifeaffirmations/

MSA Clinical Trials 

(Contact For Admission: defeatmsa@gmail.com)

http://www.facebook.com/groups/MSAgenetics/

(MSA Research Into Genetics Question Discussion)

https://www.facebook.com/groups/MSA.Forever.Friends/

(MSA Forever Friends)

 

https://www.facebook.com/groups/MSApatientLoaners/

(Defeat MSA Medical Equipment Loaner Closet Program Group)

https://www.facebook.com/groups/DefeatMSAfamily/

(Defeat MSA Family Friends & Volunteers)

https://www.facebook.com/groups/MSAbrothersandsisters/

(Defeat MSA Brothers and Sisters Group)

https://www.facebook.com/groups/MSA.Youngins/

(Defeat MSA Young Onset)

https://www.facebook.com/groups/defeatmsalgbt/

(LGBTQ – Defeat Multiple System Atrophy Alliance)

https://www.facebook.com/groups/KickMSA/

(Kick MSA To Raise Awareness)

https://www.facebook.com/groups/atrofiamultisistemica/

(Atrofia Multisistemica – Spanish MSA Central & South America Group)

https://www.facebook.com/groups/AngelsMSA/

(MSA Angels, Prayers & Spirituality)

https://www.facebook.com/groups/SupportMSA/

(Support Cause – Defeat MSA)

https://www.facebook.com/groups/MSAunitedindia/

(MSA South Asian Greater India Region)

https://www.facebook.com/groups/NordicStates/

(Nordic Region MSA)

https://www.facebook.com/groups/MSACentralEurope/

(MSA Central Europe)

https://www.facebook.com/groups/2587300801546835/

(Defeat MSA Italy – Combattiamo L’AMS)

https://www.facebook.com/groups/763513260457173/

(MSA Awareness Bracelets By Kym)

https://www.facebook.com/groups/MSAawarenessTourUK/

(Defeat MSA Awareness Shoe Tour – UK & Irealand)

DEFEAT MSA UNITED PAGES:

https://www.facebook.com/msadownunder/

(MSA Australia and New Zealand – Defeat MSA Down Under Page)

https://www.facebook.com/DefeatMSA/

(Defeat MSA Alliance – USA Page)

https://www.facebook.com/MovementDisorderMilestones/

(Milestones for MSA Page)

https://www.facebook.com/MSAshoe/

(Where is the MSA Awareness Shoe?)

https://www.facebook.com/Memes4MSA/

(Memes & Graphics Related to MSA)

https://www.facebook.com/defeatmsaunited/

(Defeat MSA United International Page)

https://www.facebook.com/msaawarenessmonth/

(MSA Awareness Month Group)

https://www.facebook.com/NeurologyByDoctorB/

(Neurology By Doctor B Page)

https://www.facebook.com/defeatmsacanada/

(Defeat Multiple System Atrophy Canada)

https://www.facebook.com/laughterismed/

(Laughter is the Best Medicine)

https://www.facebook.com/EatCake4MSA/

(Annual Cake-4-a-Cure Campaign By Defeat MSA Alliance)

https://www.facebook.com/groups/defeatmsalgbt/

(Gay, Lesbian, Bisexual, Transgender & Allies MSA Group – LGBTQ)

 

DISCLAIMER

Any of these online pages published by Defeat MSA Down Under are for informational and support purposes only. The information presented in them should not be used for suggesting any diagnosis or understood as recommending any medicines, tests or treatments. Every visitor should consult with his/her doctor or other health care provider for any medical condition.

Furthermore, Defeat MSA Down Under has used all reasonable care to protect your privacy, ensure confidentiality and maintain a safe and secure online presence. For questions about the website or information contained therein, contact: msadownunder@gmail.com

 

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