Advocate’s Blog

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Caregiver’s Blog

MSA AWARENESS WARRIORS ZOOM BACKGROUND

MSA AWARENESS WARRIORS ZOOM BACKGROUND

USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

Biohaven Announces Disappointing Results on Verdiperstat

Biohaven Announces Disappointing Results on Verdiperstat

VERY DISAPPOINTING NEWS FROM BIOHAVEN RE: VERDIPERSTAT (& M-STAR STUDY) Biohaven remains committed to neuroscience and to the MSA community. They intend to analyze the results further. Biohaven has met with Defeat MSA Alliance all along in this process and...

*NEW* RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)

*NEW* RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)

Timeline: International Phase 3 Clinical Trial of Verdiperstat in Multiple System Atrophy "Top line results from the study are expected to be available in 3rd Quarter of 2021 and will help to characterize the potential benefits and risks of Verdiperstat in MSA. After...

POSSIBLE NEW MSA DRUG

POSSIBLE NEW MSA DRUG

Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...

Patient’s Blog

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