OUR
MISSION

Realising that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is overlooked. MSA patients are confronted with a dim prognosis and left with few options. Defeat Multiple System Atrophy Australia and New Zealand is an inclusive organisation that seeks to serve all people with MSA and their carers in Australia and New Zealand. It aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research. Staffed entirely by a group of volunteers, Defeat MSA Down Under aims to achieve a four-fold mission:

  • To build a community that truly serves those that suffer from MSA.
  • To cultivate promising research into treatments and slowing MSA.
  • To nurture better education of health professionals about MSA.
  • To raise greater public awareness about living with MSA.

Defeat MSA Down Under invites all other like-minded individuals around the world, to join us in this noble fight: to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!

AWARENESS. ALLEVIATION. ADVANCEMENT.

OUR 
APPROACH

OUR PROMISE

We promise to work towards raising awareness within the medical profession and in society about Multiple System Atrophy and the everyday challenges faced by people living with it. We promise to help create a network of support for patients living with Multiple System Atrophy and their carers. We promise to foster a free and open dialogue that serves to advance scientific research. We promise to conduct our activities with the highest of professional ethics, organizational integrity and financial transparency. With confidence, and together with other like-minded charities, we will build a coalition of patients, carers, researchers, donors and policy-makers in an effort to pursue our common cause – to win the battle and forever defeat Multiple System Atrophy.

#KickMSA    #DefeatMSA    #MSAdownunder #MSAawareness    #WeRememberMSA 

BOARD OF
DIRECTORS

Joshua Lee Calvert

Member, Board of Directors; MSA Patient Advocate/AU Representative

Port Kembla, New South Wales

Rev’d Stephen Donald

Member, Board of Directors; MSA Patient Advocate/NZ Representative

Gisborne, New Zealand

Philip M. Fortier, MA

Director, Board of Directors; Representative, MSA United Council

Philosophy Faculty, University of Detroit Mercy, Detroit, USA

Cherie Miller

Secretary/Treasurer; Member, Board of Directors

Director | Principal Consultant, Trainer, Patria Consulting Pty Ltd, Moranbah, Queensland

Wikiwira Pokiha

Member, Board of Directors; MSA Caregiver Advocate/NZ Representative

Hamilton, New Zealand

Olivia Romano

Vice-Director; Member, Board of Directors, (Pictured with her loving father - RIP)

Melbourne, Victoria

Andy Macindoe

Member, Board of Directors; Media Advisor

Melbourne, Australia Owner & Filmmaker, Macindoe Media

Jacqui Simpson

Member, Board of Directors; Healthcare Business Advisor, NZ Representative

Auckland, New Zealand

In Honor of All Our

MSA Warriors

Dedicated to Family Members of Our Board Members

George Nicolaidis (14.2.1949 – 12.10.2016)

Forever In Our Loving Memory

James Leslie Williamson ‘Jimmy’ (6.2.1949 – 6.2.2016)

Forever In Our Loving Memory

*All board members and research advisors are volunteers. Defeat MSA Down Under has no paid staff or contractual employees and each board member is passionately driven by their personal or family connection to the disease.

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