OUR
MISSION

Realising that much of the current attention is focused on more widely known diseases. Multiple System Atrophy is overlooked. MSA patients are confronted with a dim prognosis and left with few options. Defeat Multiple System Atrophy Australia is an inclusive organisation that seeks to serve all people with MSA and their carers in Australia. It aspires to balance efforts to support patients, educate medical professionals, raise public awareness, and nurture promising research. Staffed entirely by a group of volunteers, Defeat MSA Down Under aims to achieve a four-fold mission:

1) To build a community that truly serves those that suffer from MSA.

2) To cultivate promising research into treatments and slowing MSA.

3) To nurture better education of health professionals about MSA.

4) To raise greater public awareness about living with MSA.

5) To advocate for the community that is impacted by MSA.

Defeat MSA Down Under invites all other like-minded individuals around the world to join us in this noble fight: to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!

AWARENESS. ALLEVIATION. ADVANCEMENT.

OURĀ 
APPROACH

OUR PROMISE

WeĀ promiseĀ to work towards raisingĀ awareness within the medical profession and in society about Multiple System Atrophy and the everyday challenges faced by people living with it. WeĀ promiseĀ to help create a network of support for patients living with Multiple System Atrophy and their carers. WeĀ promiseĀ to foster a free and open dialogue that serves to advance scientific research. WeĀ promiseĀ to conductĀ ourĀ activities with the highest of professional ethics, organizational integrity and financial transparency. With confidence, and together with other like-minded charities, we will build a coalition of patients, carers, researchers, donors and policy-makers in an effort to pursueĀ ourĀ common cause – to win the battle and foreverĀ defeatĀ Multiple System Atrophy.

#KickMSAĀ Ā Ā  #DefeatMSAĀ Ā Ā  #MSAdownunder #MSAawarenessĀ Ā Ā  #WeRememberMSAĀ 

BOARD OF
DIRECTORS

Philip Fortier

Chair/President & Director, Board of Directors; MSA United Consortium Leaders Council

Philosophy Faculty, University of Detroit Mercy, Detroit, USA

Cherie Miller

Teasurer/Secretary & Director, Board of Directors

Principal Consultant, Trainer, Patria Consulting Pty Ltd,; Moranbah, Queensland

Olivia Romano

Vice-Chair/Vice-President & Director; Board of Directors, MSA United Consortium Leaders Council (Pictured with her loving father - RIP)

Melbourne, Victoria

Andy Macindoe

Media Advisor, Director, Board of Directors

Owner & Filmmaker, Macindoe Media Melbourne, Victoria

Ross McLennan, PhD

Research Director, Director, Board of Directors; MSA United Consortium Global Research Committee, MSA United Consortium Leaders Council

Executive Director, Research Services Macquarie University, Sydney, New South Wales

In Honor of All Our

MSA Warriors

Dedicated to Family Members of Our Board Members

George Nicolaidis (14.2.1949 – 12.10.2016)

Forever In Our Loving Memory

James Leslie Williamson ‘Jimmy’ (6.2.1949 – 6.2.2016)

Forever In Our Loving Memory

*All board members and research advisors are volunteers.Ā Defeat MSA Down Under has no paid staff or contractual employees and each board member is passionately driven by their personal or family connection to the disease.

BOARD OF
ADVISORS

 

 

 

All

Joshua Lee Calvert

Emeritus Director, Founding Director; MSA Patient Advocate/AU Representative

Port Kembla, New South Wales

Jacqui Simpson

Healthcare & Business Advisor

Auckland, New Zealand

Rev’d Stephen Donald

MSA Patient Advocate/NZ Representative

Gisborne, New Zealand

LOOKING FOR OTHER WAYS TO GET INVOLVED?

JOIN THE MOVEMENT TOĀ #DEFEATMSA

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