Welcome To
MSA
Down Under

What is Multiple System Atrophy?

Learn About MSA and Symptoms, See Known Treatments

Raise Awareness

Raise MSA Awareness, Volunteer to Help, Host MSA Shoe!

Find Support

Meet Others, Find Resources, Connect with Partners

Learn About Research

Get Updates, Read Our Research Blog, See Our Advisors

Connect With Us

Contact Us, Subscribe To Newsletter, Follow Us

Give To Defeat MSA

Learn About Legacy Funds, Volunteer, Donate To Us

Help us Defeat MSA Now

Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.

News From Social Media

DefeatMSA Posts from Facebook

Conference will be recorded for later viewing...
#MSAdownunderREGISTER NOW FREE
- www.msa-conference.org
First Global Virtual MSA Conference !
#defeatmsa #kickmsa #msaconference #msa
... See MoreSee Less

View on Facebook

What red flags do you watch for in a PD diagnosis that might make you consider a-typical parkinsonism? Any specific to MSA?  https://onlinelibrary.wiley.com/doi/10.1002/mds.28126

First Virtual Global MSA Conference; Saturday, Sept 19, 2020; http://www.msa-conference.org Registration opening soon! #defeatmsa #kickmsa #msaconference #msaunited #msaresearch #msawarrior


PODCASTS

“Long Live The Brains”

Hosts

Philip Tipton, MD (Mayo Clinic)

&

Kandice Jacobs Robinson, LFDE


Fighting to Defeat MSA: Part 1 of 2

Fighting to Defeat MSA: Part 2 of 2

“Safety Issues in Multiple System Atrophy”

LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA Expert
Spotlight

Patrik Brundin, M.D., Ph.D.

Patrik Brundin, M.D., Ph.D.

Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan

Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s  as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.

List of Publications

Scholia List of Publications

Spotlight Links

 

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world.

As of 2020, our beloved Shoe is kicking MSA down under. If you are in Australia or New Zealand and you interested in having the Shoe stop by, send us an email: themsashoe@gmail.com

We will do our best to include in the schedule! 

#DefeatMSA #KickMSA #DefeetMSA #MSAdownunder

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA

Join the world-wide MSA Awareness initiative

Join the world-wide MSA Awareness initiative

Patients Need Our Help

Defeat MSA Down Under invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!

Join the world-wide MSA Awareness initiative

Our Legacy Grants

Our Legacy Grants

The Defeat MSA Down Under special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: director@msadownunder.org.au

MSA Blogs 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

Advocate’s Blog

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...

Patient’s Blog

“Defeat MSA allied charities were formed to give voice to those affected by this little known, devastating disease. Indescribable grief and suffering has been channeled into positive action to help fund crucial research and provide ongoing support for those dealing with MSA. Each one of the Defeat MSA charities are worthwhile organizations. I hope to see each of them continue to grow and reach more and more people in need.”

Elena Fracassa, MS

“All the charities associated with Defeat MSA are committed to the funding of clinical research, that kind which is most valuable to patients living with MSA today. Defeat MSA is also dedicated to supporting patients, educating medical professionals and raising public awareness. This disease does not have a marathon or a 5k run; instead they use an intriguing device: a traveling shoe in a symbolic marathon to spread awareness within the medical community and among the general public about this devastating disease.”

Dr. Pratik Bhattacharya, MD, MPH

LOOKING FOR OTHER WAYS TO GET INVOLVED?

JOIN THE MOVEMENT TO #DEFEATMSA

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