Welcome To
MSA
Down Under
Help us Defeat MSA Now
Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.
PODCASTS
“Long Live The Brains”
Hosts
Dr. Philip Tipton (Mayo Clinic)
&
Kandice Jacobs Robinson, LFDE (Kandice Jacobs Creations, Inc.)
Fighting to Defeat MSA: Part 1 of 2
Fighting to Defeat MSA: Part 2 of 2
News From Social Media
DefeatMSA Posts from Facebook
A message to health professionals in Central Queensland from one of our Directors Cherie Miller who facilitated the education event last year.
TikTok 2: If you have lost a loved one, and want to include him/her in our next TikTok, email us with photo, name and dates: defeatmsa@gmail.com
If you are interested in honoring a loved one lost to MSA or joining our fight, donate: www.msadownunder.org.au/donate-to-us/
In Honor of All Those Lost, We Continue To Fight, To Defeat MSA Forever!
#defeatmsa #KickMSA #WeRememberMSA
Just posted a photo @ Brisbane, Queensland, Australia https://www.instagram.com/p/CATnmgaAIf_/?igshid=fh7mu3umazz5
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
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MSA Expert
Spotlight
Patrik Brundin, M.D., Ph.D.
Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan
Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.
List of Publications
Spotlight Links
- “Life on the river” – Reflection by Dr. Patrik Brundin in The Lanclet (neurology journal)
- The Patrik Brundin Lab (VAI)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world.
As of 2020, our beloved Shoe is kicking MSA down under. If you are in Australia or New Zealand and you interested in having the Shoe stop by, send us an email: themsashoe@gmail.com
We will do our best to include in the schedule!
#DefeatMSA #KickMSA #DefeetMSA #MSAdownunder
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA
Join the world-wide MSA Awareness initiative
Join the world-wide MSA Awareness initiative
Patients Need Our Help
Defeat MSA Down Under invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!
Join the world-wide MSA Awareness initiative
Our Legacy Grants
Our Legacy Grants
The Defeat MSA Down Under special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: director@msadownunder.org.au
MSA Blogs
Caregiver’s Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Researcher’s Blog
SEMINAR: “A-Syn Conformational Strains and Patient Perspective”
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
“A Path Forward” – Dr. Amanda Woerman (Univ. of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
Advocate’s Blog
THANK YOU TO ALL OUR RECENT VOLUNTEERS!
A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...
On the Road Again – MSA Awareness Shoe Departs Brisbane for Melbourne!
Our beloved MSA Awareness Shoe is back on the road after helping to #KickMSA in Brisbane, Australia and surrounding areas! Thank you Pamela and Richard Woolford for hosting our dear globetrotting shoe! Now it returns to home base, Melbourne to the care of Olivia...
Defeat MSA Announces Sponsorship of Global MSA Research Congress
ST. CLAIR SHORES, MI, February 19, 2020 - DEFEAT MSA ALLIANCE is pleased to announce its support as a primary funder of the 7th International Congress of Multiple System Atrophy: Toward a Cure for Multiple System Atrophy. Defeat MSA Alliance is a newly formed...
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA allied charities were formed to give voice to those affected by this little known, devastating disease. Indescribable grief and suffering has been channeled into positive action to help fund crucial research and provide ongoing support for those dealing with MSA. Each one of the Defeat MSA charities are worthwhile organizations. I hope to see each of them continue to grow and reach more and more people in need.”
Elena Fracassa, MS
“All the charities associated with Defeat MSA are committed to the funding of clinical research, that kind which is most valuable to patients living with MSA today. Defeat MSA is also dedicated to supporting patients, educating medical professionals and raising public awareness. This disease does not have a marathon or a 5k run; instead they use an intriguing device: a traveling shoe in a symbolic marathon to spread awareness within the medical community and among the general public about this devastating disease.”
Dr. Pratik Bhattacharya, MD, MPH
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