Welcome To
MSA
Down Under

What is Multiple System Atrophy?

Learn About MSA and Symptoms, See Known Treatments

Raise Awareness

Raise MSA Awareness, Volunteer to Help, Host MSA Shoe!

Find Support

Meet Others, Find Resources, Connect with Partners

Learn About Research

Get Updates, Read Our Research Blog, See Our Advisors

Connect With Us

Contact Us, Subscribe To Newsletter, Follow Us

Give To Defeat MSA

Learn About Legacy Funds, Volunteer, Donate To Us

Help us Defeat MSA Now

Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.

News From Social Media

Happy Birthday to Our Sister Charity Partner in the US - Defeat MSA Alliance! 🙏💜Happy Birthday - Defeat MSA Alliance!Corporate Founding: August 4, 2012(IRS Recognition: 2013)#defeatmsa #kickmsa #msaangel #research #WeRememberMSA 🙏Happy Heavenly Birthday Joe Fortier, who inspired the founding of Defeat MSA Alliance (US) and formed its mission to serve others impacted by MSA! ... See MoreSee Less
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Pleased to share a new educational video about the MSA journey from our friends at Biohaven Pharmaceuticals . Defeat MSA Alliance assisted in the development of some of these new MSA awareness videos. youtu.be/myypLFbgYZg#defeatmsa #KickMSA #MultipleSystemAtrophy #MSAwarriors ... See MoreSee Less
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@NeilChatterBox @LashuelLab @Hlashuel @ZivGanOr @ChicagoMovemen1 @foltynie @AMahajanMD @saobettencourt @UsmanSaeed71 @InMemoriamMSA @msadownunder @Canada_MSA_AMS @MSAtrust @MSAshoe @CurePSPJaclyn @CurePSPJaclyn @CurePSP @Korthlab_HHU @proukakis @PSPAwareness @touteiro https://twitter.com/DefeatMsa/status/1413234416328003589

Defeat MSA Alliance@DefeatMsa

https://defeatmsa.org/new-request-for-proposals-2021/ @JoelWattsLab @Woerman_Lab @MXHend @peelaerts_w @LynneKrohn @alpha_synuclein @synuclein2019 @BrundinPatrik

LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA Expert
Spotlight

Wouter Peelaerts, PhD

Wouter Peelaerts, PhD

KU Leuven, Belgium

Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.

List of Publications

Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.

Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally

Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.

Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.

 

Spotlight Links

“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)

Fulbright grantee (2017–2018)

Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)

FWO postdoctoral fellowship (2017 – 2020)

Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)

about the

Defeat MSA Awareness Shoe – #KickMSA

 

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world.

As of 2020, our beloved Shoe is kicking MSA down under. If you are in Australia or New Zealand and you interested in having the Shoe stop by, send us an email: themsashoe@gmail.com

We will do our best to include in the schedule! 

#DefeatMSA #KickMSA #DefeetMSA #MSAdownunder

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA

Join the world-wide MSA Awareness initiative
Join the world-wide MSA Awareness initiative

Patients Need Our Help

Defeat MSA Down Under invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!

Join the world-wide MSA Awareness initiative

Our Legacy Grants

Our Legacy Grants

The Defeat MSA Down Under special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: director@msadownunder.org.au

MSA Blogs 

Caregiver’s Blog

MSA AWARENESS WARRIORS ZOOM BACKGROUND

MSA AWARENESS WARRIORS ZOOM BACKGROUND

USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

*NEW* RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)

*NEW* RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)

Timeline: International Phase 3 Clinical Trial of Verdiperstat in Multiple System Atrophy "Top line results from the study are expected to be available in 3rd Quarter of 2021 and will help to characterize the potential benefits and risks of Verdiperstat in MSA. After...

POSSIBLE NEW MSA DRUG

POSSIBLE NEW MSA DRUG

Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...

Advocate’s Blog

*** WORLD’S FIRST LIVE-STREAM GAMING MSA FUNDRAISER !!! ***

*** WORLD’S FIRST LIVE-STREAM GAMING MSA FUNDRAISER !!! ***

Know Any Streamers? Know Any Gamers? Spread the World! ----Defeat MSA Down Under is pleased to announce:  The World’s First LiveStream Gaming Fundraiser: 21 May - 30 May, 2021 Benefiting Defeat MSA Down Under! Hosted By: "Lilithiasonata" & Other Streamers:  ...

SAVE THE DATE: MSA ANNUAL VIRTUAL CONFERENCE, OCTOBER 1-3, 2021

SAVE THE DATE: MSA ANNUAL VIRTUAL CONFERENCE, OCTOBER 1-3, 2021

Defeat MSA Australia and New Zealand, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the second Annual All-Community MSA Conference to be held October 1-3, 2021. This year's conference will include several exciting...

MSA AWARENESS ANGELS ZOOM BACKGROUND

MSA AWARENESS ANGELS ZOOM BACKGROUND

USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS THOSE LOST TO MSA, ALL OUR ANGELS - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msaangels #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy

Patient’s Blog

“Defeat MSA allied charities were formed to give voice to those affected by this little known, devastating disease. Indescribable grief and suffering has been channeled into positive action to help fund crucial research and provide ongoing support for those dealing with MSA. Each one of the Defeat MSA charities are worthwhile organizations. I hope to see each of them continue to grow and reach more and more people in need.”

 

Elena Fracassa, MS

“All the charities associated with Defeat MSA are committed to the funding of clinical research, that kind which is most valuable to patients living with MSA today. Defeat MSA is also dedicated to supporting patients, educating medical professionals and raising public awareness. This disease does not have a marathon or a 5k run; instead they use an intriguing device: a traveling shoe in a symbolic marathon to spread awareness within the medical community and among the general public about this devastating disease.”

 

Dr. Pratik Bhattacharya, MD, MPH

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