Welcome To
MSA
Down Under
Help us Defeat MSA Now
Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.
News From Social Media
Just posted a photo @ Leuven, Belgium https://www.instagram.com/p/CVE4mwCMZ8W/?utm_medium=twitter
Click Our Profile Link to Access Free Conference Registration & Watch Films https://www.instagram.com/p/CUdpXAGre7p/?utm_medium=twitter
It's Father's Day in Australia today.
I need to remind you that not everyone has a father or still has one.
I lost my father to Multiple System Atrophy, a terminal neurodegenerative disease.
Please donate to @msadownunder if you can.
https://www.msadownunder.org.au/donate-to-us/
~ I miss you, Dad.
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
MSA Expert
Spotlight
Wouter Peelaerts, PhD
KU Leuven, Belgium
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen ā Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science.Ā Vol 168.Ā Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. É-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256ā274.
Spotlight Links
āSticking With MSAā -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Fulbright grantee (2017ā2018)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 ā 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world.
As of 2020, our beloved Shoe is kicking MSA down under. If you are in Australia or New Zealand and you interested in having the Shoe stop by, send us an email: themsashoe@gmail.com
We will do our best to include in the schedule!Ā
#DefeatMSA #KickMSA #DefeetMSA #MSAdownunder
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA
Patients Need Our Help
Defeat MSA Down Under invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!
Our Legacy Grants
Our Legacy Grants
The Defeat MSA Down Under special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: director@msadownunder.org.au
MSAĀ BlogsĀ
Caregiver’s Blog
MSA AWARENESS WARRIORS ZOOM BACKGROUND
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
āBut Iād of had to miss the danceā¦ā ā Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSAās āCaregiverās Blog.āĀ The idea is to share our story in an effort to help others on the MSA...
Researcher’s Blog
Biohaven Announces Disappointing Results on Verdiperstat
VERY DISAPPOINTING NEWS FROM BIOHAVEN RE: VERDIPERSTAT (& M-STAR STUDY) Biohaven remains committed to neuroscience and to the MSA community. They intend to analyze the results further. Biohaven has met with Defeat MSA Alliance all along in this process and...
*NEW* RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)
Timeline: International Phase 3 Clinical Trial of Verdiperstat in Multiple System Atrophy "Top line results from the study are expected to be available in 3rd Quarter of 2021 and will help to characterize the potential benefits and risks of Verdiperstat in MSA. After...
Advocate’s Blog
WORLD PREMIERE: āGLIMPSESā (NZ) on Saturday, Oct 2, 2021
DEFEAT MSA ALLIANCE held the WORLD PREMIERE of a new documentary from New Zealand: āGLIMPSESā on Saturday, Oct 2, 2021 on the last day of the Second Annual All-Community Virtual Conference in honor of WORLD MSA DAY ā OCTOBER 3, 2021. This free film was shown along...
*** WORLD’S FIRST LIVE-STREAM GAMING MSA FUNDRAISER !!! ***
Know Any Streamers? Know Any Gamers? Spread the World! ----Defeat MSA Down Under is pleased to announce:Ā The Worldās First LiveStream Gaming Fundraiser: 21 May - 30 May, 2021 Benefiting Defeat MSA Down Under! Hosted By: "Lilithiasonata" & Other Streamers:Ā Ā ...
ALL COMMUNITY MSA VIRTUAL CONFERENCE, SEPT 24-OCT 2 – FREE
REGISTER NOW - CLOSING SOON! Defeat MSA Australia and New Zealand, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the second Annual All-Community MSA Conference to be held 24 Sept - 2 Oct, 2021. This year's...
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA allied charities were formed to give voice to those affected by this little known, devastating disease. Indescribable grief and suffering has been channeled into positive action to help fund crucial research and provide ongoing support for those dealing with MSA. Each one of the Defeat MSA charities are worthwhile organizations. I hope to see each of them continue to grow and reach more and more people in need.”
“All the charities associated with Defeat MSA are committed to the funding of clinical research, that kind which is most valuable to patients living with MSA today. Defeat MSA is also dedicated to supporting patients, educating medical professionals and raising public awareness. This disease does not have a marathon or a 5k run; instead they use an intriguing device: a traveling shoe in a symbolic marathon to spread awareness within the medical community and among the general public about this devastating disease.”
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